The Official Parent's Sourcebook On Friedreich's Ataxia: A Revised And Updated Directory For The Internet Age

This sourcebook has been created for parents who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells parents where and how to look for information covering virtually all topics related to friedreich's ataxia, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on friedreich's ataxia. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Friedreich's Ataxia: Guidelines; Chapter 2. Seeking Guidance; Chapter 3. Clinical Trials and Friedreich's Ataxia; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 4. Studies on Friedreich's Ataxia; Chapter 5. Books on Friedreich's Ataxia; Chapter 6. Multimedia on Friedreich's Ataxia; Chapter 7. Physician Guidelines and Databases; PART III. APPENDICES; Appendix A. Researching Your Child's Medications; Appendix B. Researching Nutrition; Appendix C. Finding Medical Libraries; Appendix D. Your Child's Rights and Insurance; ONLINE GLOSSARIES; FRIEDREICH'S ATAXIA GLOSSARY; INDEX. Related topics include: familial ataxia, Friedreich's Disease, Friedreich's Tabes, hereditary ataxia of Friedreich, Hereditary Ataxia, Friedrich's Type, hereditary spinal ataxia, Spinal Ataxia, Hereditofamilial, spinocerebellar ataxia, Spinocerebellardegeneration.