The Official Parent's Sourcebook On Gaucher's Disease: A Revised And Updated Directory For The Internet Age

This sourcebook has been created for parents who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells parents where and how to look for information covering virtually all topics related to gaucher's disease, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on gaucher's disease. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Gaucher's Disease: Guidelines; Chapter 2. Seeking Guidance; Chapter 3. Clinical Trials and Gaucher's Disease; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 4. Studies on Gaucher's Disease; Chapter 5. Patents on Gaucher's Disease; Chapter 6. Books on Gaucher's Disease; Chapter 7. Multimedia on Gaucher's Disease; Chapter 8. Physician Guidelines and Databases; PART III. APPENDICES; Appendix A. Researching Your Child's Medications; Appendix B. Researching Alternative Medicine; Appendix C. Researching Nutrition; Appendix D. Finding Medical Libraries; Appendix E. Your Child's Rights and Insurance; ONLINE GLOSSARIES; GAUCHER'S DISEASE GLOSSARY; INDEX. Related topics include: Acid Beta-glucosidase Deficiency, Acute Cerebral Gaucher Disease, Cerebroside Lipidosis, cerebroside lipoidosis, Cerebrosidosis, Familial Splenic Anemia, Gaucher-Schlagenhaufer, Glucocerebrosidase deficiency, Glucocerebroside storage disease, Glucocerebrosidosis, Glucosyl Ceramide Lipidosis, Histiocytosis, lipid, kerasin type, Infantile Gaucher Disease, Norrbottnian Gaucher Disease.