The Official Patient's Sourcebook On Osteogenesis Imperfecta: A Revised And Updated Directory For The Internet Age

This sourcebook has been created for patients who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells patients where and how to look for information covering virtually all topics related to osteogenesis imperfecta, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on osteogenesis imperfecta. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Osteogenesis Imperfecta: Guidelines; Chapter 2. Seeking Guidance; Chapter 3. Clinical Trials and Osteogenesis Imperfecta; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 4. Studies on Osteogenesis Imperfecta; Chapter 5. Books on Osteogenesis Imperfecta; Chapter 6. Multimedia on Osteogenesis Imperfecta; Chapter 7. Periodicals and News on Osteogenesis Imperfecta; Chapter 8. Physician Guidelines and Databases; Chapter 9. Dissertations on Osteogenesis Imperfecta; PART III. APPENDICES; Appendix A. Researching Your Medications; Appendix B. Researching Alternative Medicine; Appendix C. Researching Nutrition; Appendix D. Finding Medical Libraries; Appendix E. Your Rights and Insurance; ONLINE GLOSSARIES; OSTEOGENESIS IMPERFECTA GLOSSARY; INDEX. Related topics include: Brittle bone disease, Ekman-Lobstein Disease, Lobstein Disease (Type I), Osteopathyrosis, Vrolik Disease (Type II).